Feelings and the acceptance spectrum in adult stuttering

A large-scale qualitative study

Authors

  • Angela M Medina Florida International University
  • Gretel Perez Florida International University

DOI:

https://doi.org/10.1558/jircd.21174

Keywords:

stuttering, qualitative, acceptance, feelings, attitudes, thematic analysis

Abstract

Purpose: The purpose of this exploratory study was to describe the feelings about and attitudes toward stuttering expressed in the narrative responses of a large sample of adults who stutter.

Method: Eighty-eight adults who stutter answered an online survey questionnaire on their feelings about their stuttering. Thematic analysis was conducted to investigate the individual nuances of each participant’s response, which gave rise to general themes across the sample.

Results: Five major themes emerged from participants’ responses regarding their feelings about their stuttering: (I) negative feelings about stuttering; (II) negative attitudes toward stuttering; (III) negative impact on quality of life; (IV) the acceptance spectrum; and (V) exclusively positive feelings and attitudes about stuttering. Negative feelings included embarrassment and shame, frustration, and grief, while negative attitudes were hatred, dislike, and annoyance. Stuttering’s negative impact on participants’ lives in general as well as on specific aspects such as job interviews were described. Participants reported varying degrees of acceptance, highlighting that acceptance is not an ‘all or nothing’ phenomenon. Examples of positive feelings were confidence and comfort.

Conclusion: The vast majority of participants included negatively charged elements in their responses, and acceptance was largely described as being a fluid phenomenon, regardless of participants’ ages. Findings indicate clinical implications for addressing feelings, attitudes, and acceptance across the lifespan.

Author Biographies

  • Angela M Medina, Florida International University

    Miami, Florida. She earned her PhD in applied language and speech sciences from the University of Louisiana at Lafayette, where she also completed coursework and clinical requirements for the CCC-SLP. Dr. Medina teaches fluency disorders, phonological disorders, phonetics, and linguistics. Her program of research focuses on stuttering in Hispanic, Latino/-x, and Spanish–English bilingual communities. She has published and presented work on the linguistic construction of the Spanish–English bilingual stuttering experience, fluency-inducing strategies used by Spanish–English-speaking bilinguals who stutter, and stigma as experienced by Hispanics who stutter. In this line of research, Dr. Medina infuses her background in linguistics with her expertise in stuttering and qualitative research methods, in order to shed light on the cultural and clinical implications uniquely faced by people who stutter in these communities. As co-director of the Mindfulness Research Lab in the Department of Communication Sciences and Disorders, Dr. Medina is engaged in designing and testing the efficacy of mindfulness meditation programs for people who stutter, as well as graduate health sciences students. Dr. Medina is Research Chair and Miami Chapter Leader of the National Stuttering Association. She is a member of American Speech-Language-Hearing Association (ASHA) Special Interest Group 4: Fluency Disorders and 14: CD in Culturally and Linguistically Diverse Populations.

  • Gretel Perez, Florida International University

    Gretel Perez, MS, CF-SLP, received her master’s degree in speech-language pathology from Florida International University, where she graduated summa cum laude. She is completing her clinical fellowship in a neurology clinic, where she specializes in treating adults with neurological impairments affecting speech, language, cognition, and swallow function. She has experience in working with individuals with fluency disorders, including developmental stuttering, psychogenic stuttering, and neurogenic stuttering. She has volunteered for the National Stuttering Association’s Miami Chapter. She is licensed in the State of Florida and is a member of ASHA. Her clinical interests include fluency disorders, traumatic brain injury, stroke, aphasia, and cognitive disorders. Gretel strives to provide each of the clients she serves with the tools to be successful in making meaningful connections through communication.

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Published

2022-09-30

Issue

Section

Articles

How to Cite

Medina, A. M., & Perez, G. (2022). Feelings and the acceptance spectrum in adult stuttering: A large-scale qualitative study. Journal of Interactional Research in Communication Disorders, 13(2), 244–268. https://doi.org/10.1558/jircd.21174