Involving patients, families and medical staff in the evaluation of 3D printing models of congenital heart disease

Authors

  • Giovanni Biglino Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children
  • Claudio Capelli Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children
  • Lindsay-Kay Leaver Great Ormond Street Hospital for Children
  • Silvia Schievano Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children
  • Andrew M. Taylor Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children
  • Jo Wray Great Ormond Street Hospital for Children

DOI:

https://doi.org/10.1558/cam.28455

Keywords:

congenital heart disease, patient and public involvement, personalised medicine, rapid prototyping

Abstract

Objective: To evaluate the usefulness of 3D printing patient-specific models of congenital heart disease (CHD) from the perspective of different stakeholders potentially benefiting from the technology (patients, parents, clinicians and nurses). Methods: Workshops, focus groups and teaching sessions were organized, each targeting a different group of stakeholders. Sessions involved displaying and discussing different 3D models of CHD. Model evaluation involved questionnaires, audio-recorded discussions and written feedback. Results: All stakeholders expressed a liking for the 3D models and for the patient-specific quality of such models. Patients indicated that 3D models can help them imagine “what’s going on inside” and parents agreed that these tools can spark curiosity in the young people. Clinicians indicated that teaching might be the most relevant application of such novel technology and nurses agreed that 3D models improved their learning experience during a course focused on CHD. Conclusion: The successful engagement of different stakeholders to evaluate 3D printing technology for CHD identified different priorities, highlighting the importance of eliciting the views of different groups. Practice Implications: A PPI-based approach in the evaluation and translation of 3D printing technology may increase patient empowerment, improve patient-doctor communication and provide better access to a new teaching and training tool.

Author Biographies

Giovanni Biglino, Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children

Giovanni Biglino studied bioengineering at Imperial College London. He has a PhD in cardiovascular mechanics from Brunel Institute of Bioengineering and a diploma in biostatistics from Harvard Medical School. He is currently working at University College London on modelling of congenital heart disease as part of a fellowship with the National Institute of Health Research (NIHR).

Claudio Capelli, Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children

Claudio Capelli graduated in biomedical engineering from Politecnico di Milano and gained his PhD from University College London. His research interests involve patient-specific computational simulations, 3D modelling from medical imaging and structural simulation for studying medical devices.

Lindsay-Kay Leaver, Great Ormond Street Hospital for Children

Lindsay-Kay Leaver is the Adolescent Nurse Specialist at Great Ormond Street Hospital. Her research focuses on loss to follow-up. She runs workshops with patients and liaises with charities and organisations to support patients’ development into independent individuals.

Silvia Schievano, Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children

Silvia Schievano is a Senior Lecturer in Biomedical Engineering at University College London. Her main research interest is patient-specific modelling for cardiovascular applications (particularly cardiovascular devices) and for craniofacial modelling. She pioneered the use of 3D printing for testing devices during the development of the Melody Valve (Medtronic®), a percutaneous pulmonary device.

Andrew M. Taylor, Centre for Cardiovascular Imaging UCL Institute of Cardiovascular Science & Great Ormond Street Hospital for Children

Andrew M. Taylor is a Professor of Cardiovascular Imaging at the UCL Institute of Cardiovascular Science, and Divisional Director and Cardiac Academic Lead of Cardiorespiratory Services at Great Ormond Street Hospital for Children.

Jo Wray, Great Ormond Street Hospital for Children

Jo Wray is a Health Psychologist and a Senior Research Fellow at Great Ormond Street Hospital. Her PhD research focused on the psychological impact of congenital heart disease and cardiac surgery for children and families. She has worked with paediatric transplant patients and leads on psychosocial research and patient-reported outcomes and experiences in the Critical Care and Cardiorespiratory Division at Great Ormond Street Hospital.

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Published

2016-11-07

How to Cite

Biglino, G., Capelli, C., Leaver, L.-K., Schievano, S., Taylor, A. M., & Wray, J. (2016). Involving patients, families and medical staff in the evaluation of 3D printing models of congenital heart disease. Communication and Medicine, 12(2-3), 157–169. https://doi.org/10.1558/cam.28455