Influences on Bereaved Family Uptake of Chaplaincy Support when Viewing the Deceased Person
A Case Series Study in Controlled Conditions
DOI:
https://doi.org/10.1558/hscc.29358Keywords:
Bereaved relatives, chaplaincy, hospital, Case Series, Qualitative, InterviewsAbstract
It is a belief widely held that hospital chaplains have a role to play in supporting bereaved relatives of patients, but research on the subject is sparse. The aim of this study was to examine factors that apparently influenced the decision to accept or refuse the offer of chaplaincy support through a case series study of ten bereaved family members who accessed an in-hospital “supported viewing service” following the sudden or unexpected death from natural causes of an adult relative. Data gathered at a UK hospital between October 2022 and April 2023 were subjected to qualitative content analysis. Analysis of the interview data yielded four categories that governed the decision: (1) Who decides? (2) Who benefits? (3) Role of religious preference and context. (4) Positive reasons for rejection. These indicate that the response to the offer of prayer is contingent on details of the biographical, temporal, social and religious context which need to be considered when the offer is made.
References
Barletta, J., & Witteveen, K. (2007). Pastoral care in hospital: An overview of issues. Australian Journal of Primary Health, 13(1), 97–105. https://doi.org/10.1071/PY07013
Beardsley, C. (2009). “In need of further tuning”: Using a US patient satisfaction with chaplaincy instrument in a UK multi-faith setting, including the bereaved. Clinical Medicine, 9(1), 53–56. https://doi.org/10.7861/clinmedicine.9-1-53
Billings, J. A., & Kolton, E. (1999). Family satisfaction and bereavement care following death in the hospital. Journal of Palliative Medicine, 2(1), 33–49. https://doi.org/10.1089/jpm.1999.2.33
Bloomer, M. J., Poon, P., Runacres, F., & Hutchinson, A. M. (2022). Facilitating family needs and support at the end of life in hospital: A descriptive study. Palliative Medicine, 36(3), 549–554. https://doi.org/10.1177/02692163211066431
Boven, C., Dillen, L., Van den Block, L., Piers, R., Van Den Noortgate, N., & Van Humbeeck, L. (2022). In-hospital bereavement services as an act of care and a challenge: An integrative review. Journal of Pain and Symptom Management, 63(3), e295–e316. https://doi.org/10.1016/j.jpainsymman.2021.10.008
Broccolo, G. T., & VandeCreek, L. (2004). How are health care chaplains helpful to bereaved family members? Telephone survey results. Journal of Pastoral Care & Counseling , 58(1–2), 31–39. https://doi.org/10.1177/154230500405800105
Cullen, I., Bailes, M., Shropshire, P., Perry, S., & Karlekar, M. (2024). Connecting families to bereavement resources: A hospital-based, bereavement follow-up pilot during first-wave COVID-19. Journal of Palliative Medicine, 27(4), 532–536. https://doi.org/10.1089/
jpm.2023.0375
De Faria-Schützer, D. B., Surita, F. G., Alves, V. L. P., Bastos, R. A., Campos, C. J. G., & Turato, E. R. (2021). Seven steps for qualitative treatment in health research: The clinical-qualitative content analysis. Ciencia e Saude Coletiva, 26(1), 265–274. https://doi.org/10.1590/1413-81232020261.07622019
Domaradzki, J. (2023). Hospital chaplains facing the pandemic: A qualitative study. Journal of Health Care Chaplaincy, 29(1), 145–160. https://doi.org/10.1080/08854726.2022.2043680
Egan, K. A., & Arnold, R. L. (2003). Grief and bereavement care: With sufficient support, grief and bereavement can be transformative. American Journal of Nursing, 103(9). https://doi.org/10.1097/00000446-200309000-00015 https://journals.lww.com/ajnonline/fulltext/2003/09000/grief_and_bereavement_care__with_sufficient.15.aspx
Engelhardt, H. T. (1998). Generic chaplaincy: Providing spiritual care in a post-Christian age. Christian Bioethics, 4(3), 231–238. https://doi.org/10.1076/chbi.4.3.231.6903
Esene, I. N., Kotb, A., & ElHusseiny, H. (2014). Five is the maximum sample size for case reports: Statistical justification, epidemiologic rationale, and clinical importance. World Neurosurgery, 82(5), e659–e665. https://doi.org/10.1016/j.wneu.2014.05.014
Jervis-Rademeyer, H., Ong, K., Djuric, A., Munce, S., Musselman, K. E., & Marquez-Chin, C. (2022). Therapists’ perspectives on using brain-computer interface-triggered functional electrical stimulation therapy for individuals living with upper extremity paralysis: A qualitative case series study. Journal of Neuro-Engineering and Rehabilitation, 19(1), 127. https://doi.org/10.1186/s12984-022-01107-2
Johnson, J. R., Engelberg, R. A., Nielsen, E. L., Erin, K., Smith, N. L., …, & Curtis, J. R. (2014). The association of spiritual care providers’ activities with family members’ satisfaction with care after a death in the ICU. Critical Care Medicine, 42(9), 1991–2000. https://doi.org/10.1097/CCM.0000000000000412
Kent, H., & McDowell, J. (2004). Sudden bereavement in acute care settings. Nursing Standard, 19(6), 38–43. https://doi.org/10.7748/ns2004.10.19.6.38.c3732
Kvale, E. A., Woodby, L., & Williams, B. R. (2010). The experience of older patients with cancer in phase 1 clinical trials: A qualitative case series. American Journal of Hospice and Palliative Medicine®, 27(7), 474–481. https://doi.org/10.1177/1049909110365072
McAfee, C., Cochrane, B., Waldron, M., Hasson, F., & Kernohan, W. G. (2006). Chaplains working in a hospice palliative care team recount the spiritual challenges at the end-of-life. Scottish Journal of Healthcare Chaplaincy, 9(2), 18–24. https://doi.org/10.1558/hscc.v9i2.18
McCall, W. T. (2020). Caring for patients from a school shooting: A qualitative case series in emergency nursing. Journal of Emergency Nursing, 46(5), 712–721.e1. https://doi.org/10.1016/j.jen.2020.06.005
McCann Klug, L. (2023). The specialty chaplain on the palliative care team: A narrative review. American Journal of Hospice and Palliative Medicine, 40(9), 1021–1028. https://doi.org/10.1177/10499091221134021
Mooren, K., Smit, K., Engels, Y., Janssen, D., & Godschalx, J. (2022). “When I am breathless now, I don’t have the fear that’s linked to it”: A case series on the potential of EMDR to break the dyspnea-anxiety cycle in COPD. BMC Pulmonary Medicine, 22(1), 456. https://doi.org/10.1186/s12890-022-02250-1
Neimeyer, R. A., & Burke, L. A. (2012). Complicated grief and the end-of-life: Risk factors and treatment considerations. In J. L. Werth (Ed.), Counseling clients near the end of life: A practical guide for mental health professionals (pp. 205–224). New York: Springer Publishing Company.
NHS England (2023). NHS chaplaincy – guidelines for NHS managers on pastoral, spiritual and religious care. London & Leeds: NHS England.
Nuzum, D., Meaney, S., & O’Donoghue, K. (2016). The provision of spiritual and pastoral care following stillbirth in Ireland: A mixed methods study. BMJ Supportive & Palliative Care, 6(2), 194–200. https://doi.org/10.1136/bmjspcare-2013-000533
Ó Coimín, D., Prizeman, G., Korn, B., Donnelly, S., & Hynes, G. (2019). Dying in acute hospitals: Voices of bereaved relatives. BMC Palliative Care, 18(1), 1–16. https://doi.org/10.1186/s12904-019-0464-z
Parkes, C. M. (1988). Bereavement as a psychosocial transition: Processes of adaptation to change. Journal of Social Issues, 44(3), 53–65. https://doi.org/10.1111/j.1540-4560.1988.tb02076.x
Ritchie, J. E. (2001). Case series research: A case for qualitative method in assembling evidence. Physiotherapy Theory and Practice, 17(3), 127–135. https://doi.org/10.1080/095939801317077588
Rybarik, F., & Midland, D. (2021). When a patient dies: Meeting spiritual needs of the bereaved in a health care setting. In G. R. Cox, R. Bendiksen & R. G. Stevenson (Eds.), Making sense of death: Spiritual, pastoral, and personal aspects of death, dying, and bereavement (pp. 163–172). Abingdon: Routledge. ht tps://doi.org/10.4324/9781315224176-17
Smith, J., Flowers, P., & Larkin, M. (2022). Interpretative phenomenological analysis theory, method and research (2nd ed.). London: Sage Publications.
Sque, M., Walker, W., & Long-Sutehall, T. (2014). Research with bereaved families: A framework for ethical decision-making. Nursing Ethics, 21(8), 946–955. https://doi.org/10.1177/0969733014521097
Stewart-Lord, A., Baillie, L., Green, L., Murphy, F., & Leary, A. (2022). Implementation and perceived impact of the SWAN model of end-of-life and bereavement care: A realist evaluation. BMJ Open, 12(12), e066832. https://doi.org/10.1136/bmjopen-2022-066832
Stroebe, M., Schut, H., & Stroebe, W. (2007). Health outcomes of bereavement. Lancet, 370(9603), 1960–1973. https://doi.org/10.1016/S0140-6736(07)61816-9
Thompson-Butel, A. G., Shiner, C. T., McGhee, J., Bailey, B. J., Bou-Haidar, P., …, & Faux, S. G. (2019). The role of personalized virtual reality in education for patients post stroke – a qualitative case series. Journal of Stroke and Cerebrovascular Diseases, 28(2), 450–457. https://doi.org/10.1016/j.jstrokecerebrovasdis.2018.10.018
Timmins, F., Caldeira, S., Murphy, M., Pujol, N., Sheaf, G., …, & Timmins, F. (2018). The role of the healthcare chaplain : A literature review. Journal of Health Care Chaplaincy, 24(3), 87–106. https://doi.org/10.1080/08854726.2017.1338048
Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
UK Commission on Bereavement (2022). Bereavement is everyone’s business: 2022 Summary report. UKCB. https://bereavementcommission.org.uk/ukcb-findings
Verma, S., Venkateshan, M., & Shetty, A. P. (2022). Contracting infection among registered nurses working in coronavirus disease units: A qualitative case series. Archives of Medicine & Health Sciences, 10(1). https://doi.org/10.4103/amhs.amhs_237_21
Voas, D. (2009). The rise and fall of fuzzy fidelity in Europe. European Sociological Review, 25(2), 155–168. https://doi.org/10.1093/esr/jcn044
Walker, W. M., Horton, R., Jones, J. ., Morrell, J., & Roberts, E. (2022). Overcoming adversity: Insights into an acute hospital service of supported viewing for families bereaved during the Covid-19 pandemic. Bereavement, 1. https://doi.org/10.54210/bj.2022.12
Wall, R. J., Engelberg, R. A., Gries, C. J., Glavan, B., & Curtis, J. R. (2007). Spiritual care of families in the intensive care unit. Critical Care Medicine, 35(4), 1084–1090. https://doi.org/10.1097/01.CCM.0000259382.36414.06
Williams, M. L., Wright, M., Cobb, M., & Shiels, C. (2004). A prospective study of the roles, responsibilities and stresses of chaplains working within a hospice. Palliative Medicine, 18(7), 638–645. https://doi.org/10.1191/0269216304pm929oa
